Happy New Year?

Well, here we are, it’s a new year.  I have ditched my iPad in favor of a Kindle Fire tablet gifted to me by Alison.  It’s become my new best friend and also made me extremely grateful for those who gift me.  I seriously couldn’t afford such tech or gadgetry for myself and I do appreciate it.

I love it and am especially happy that the keyboard I got for the iPad works with it as well.  I am, in fact, typing on it as we speak.  I play sudoku on it, read more on it, take it places with me, watch Pride and Prejudice endlessly on it while I do dishes, write on it and take pictures with it.  Eventually I’ll figure out how to text on it and then, oh boy, I’ll be set won’t I?  Unfortunately it also makes window shopping on Amazon even easier but hey, my wish lists can’t hurt me.

It’s snowing out there today and I’ve been thinking about so many things for future blogs.  My big, fat Israeli divorce.  My heart bleeding silently for Jerusalem.  My love for my fiance and home here under the permafrost.  How these two things can be compatible in my life – my two greatest loves which are so very far apart.  My son, who is growing up before me and how hard this is for us both.  How autism morphs and changes and we blaze new and unknown trails every day as he grows into such an amazing young man and I struggle, as always, to just keep up and continue to wonder why people praise me for being a great mom – really, it’s because he’s such a tremendous young man.

I’m crocheting now after my knitting just disgusted me to the point of giving it up for now although Knitpicks has my nickel plated interchangeables for sale and they’re really gnawing away at me.  I still harbor that intense hatred for Polish customs for throwing away my needles in case you’re still wondering.  Anyway, I am making a “starburst” square afghan which consists of a gabillion little kinda granny squares that are really little starbursts that will all hook together.  I need a gabillion and I think I have 17 done.  Tune in later for more on THAT one.

I’ve been baking bread that sometimes people eat and lately, most of the time they snub.  Along with most of my dinners.  Oh Scott eats everything and praises what I cook and since I cook as an art, that makes me happy but still.  I have a can of raspberry pie filling and a package of yellow cake mix….I’m thinking raspberry filled cupcaked for Shabbat this week.  If I feel like it, I MAY share them with the children.

Then again, maybe not.  Depends.

I spent most of December worrying because on the first night of Hanukkah I got a call about my old house – someone was interested in buying it.  It wasn’t in the greatest shape and really, not in the best location and honestly, I wanted to just get rid of it before someone torched it.  The median sales price for what I had was less than $20,000 so I was happy with what we negotiated and I agreed to a sales price.  Talk about a Hanukkah miracle.  Most houses where my house was are on the market for 3-5 years and houses like mine?  Usually just abandoned.  So…being the worrier I am, I worried until the sales contract was signed and then I worried until the closing because I knew it would either fall through, there would be some wild lien I couldn’t even fathom or someone would torch it before we could get pen to paper.  I asked everyone I could think of for prayers and prayed as much as I could and to my own surprise on 31 December, we closed quickly, easily and with no fanfare.  Just signed the papers, said “Well, that’s that”, said goodbye to the ex, and walked away.  I never felt so relieved in my life.

I set about paying off debts I never thought I could pay off – I can’t even describe the feeling.  I have been so poor for so long and remain poor even after everything is now settled but I know that I am building a better life that hopefully will reveal itself.

Miracles are afoot and I bask in them.  I learned a long time ago that sometimes the only thing you can do is ride the tide of the miracles and just let HaShem do his thing and take you where you’re meant to go.  Fighting it really doesn’t get you anywhere and to be honest, basking in the glow of miracles is a pretty amazing feeling.  I recommend you try it.

I still feel anxious and, I hate to say it, depressed.  Maybe it’s the winter time even though I enjoy this time.  I think maybe depression isn’t even the right word.  Sometimes tired seems more like the right word.  Like life just makes me tired.  The happys aren’t as sparkly but that doesn’t mean I don’t feel happy, it’s like Scott said to me one evening when I was watching something funny on tv – “why aren’t you laughing?”  I was amused, just not enough to make me laugh out loud.  It’s hard to describe.  I suppose it’s like you can see the sun but it’s just not sparkly sunshine.  The sky is not a birdsegg blue.  You just DO, you don’t BE.  I can’t explain but that’s how I feel about it.  Sometimes I wish I could just sleep all day but I can’t.  I know that that’s what keeps me getting up each day.  If it weren’t so cold out, I’d be walking.  Routine powers my day but it doesn’t mean it’s any less exhausting just going about the routine of life.  And I am okay with it.  The routine gets me up and moving and I try to make little bits to look forward to, to break up the monotony of the routine….but the exhaustion and boredom remain.  Maybe someday it will change.  Right now, I just don’t see that.

So anyway, if I haven’t depressed you to death or bored you silly, happy new year to you.  Have you made any resolutions?  I used to when I was little.  I’d make – wait or it….schedules and routines for me to follow.  Now, not so much.  I make changes as I go…I don’t necessarily see calendar dates as the big time to decide to change my life.  This year I will be walking a 5k at the Pittsburgh Marathon and I am raising money for Evan’s Miracle League baseball team that allows kids with special needs to play adaptive baseball  (DONATE HERE) which is one of the most worthwhile things I can think of EVER doing so I am training for that.  And as usual I am doing random acts of kindness like carrying my emergency dollar to help people with change at the grocery store, helping out when I can (like bringing in trash cans when people are at work and it’s windy) and just trying to be a better human being this year.

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Three Cheers for Acarbose!

I went to see the endocrinologist about a month ago.  I had been to see him in 2010 when I started having issues with my low blood sugar.  It was a bad situation.  I’d be out and about and without warning, down it would go to where I couldn’t even see.  I had no idea how low it really was until 2011 when I had a seizure the first night of Hanukkah in Jerusalem on the 4A bus.

In Israel I was tested and finally given the drug acarbose.  I really felt it changed my life.  No more of those wild lows where I felt like I was on some weird psychadelic trip with my vision cutting out on me.  No more seizures.  No more worries of being alone out in public.

But then I came back to the US.  And I had to get new doctors and scripts for my meds and this proved to be a huge problem.

I ran into a nurse practioner who refused to give me the meds I needed even though I had all of my prescription boxes with the labels attached.  Instead she turned me into the Department of Transportation for 1) having seizures, 2) having hypoglycaemia and 3) taking medication that could impair my ability to drive  (that also doubles for someone who is addicted to drugs).  If she had just listened to me, maybe I’d still be driving.  In the meantime I was back to the wild psychadelic trips and became very agoraphobic because I am always afraid I’ll have a low and a subsequent seizure when I am away from the safety of home.

Well, anyway, nearly a year and a half later, I am on anti seizure medication (number 1 taken care of) and on Friday afternoon my endocrinologist called and told me all my tests indicated that yes, I had hypoglycaemia (you don’t say…)

I had two choices.  I could go to a more specialized endo and get more specialized tests done which probably would result in some extensive surgery (read: remove part or all of my pancreas) OR I could try prescription medication to see if that would bring the condition under control.

I chose the medication option since I already have a Frankentummy and I don’t really want to Frankenize anything further at this point.  My endo said that would be his choice as well and then called in a script for the acarbose I had been taking in Israel, had asked for a year and a half ago from the nurse practitioner (until I could get an endocrinologist appointment) and had even asked the endocrinologist for at my first appointment.

I started taking it right away.

He told me to check my blood sugar 4 times a day and then bring my meter in and if it remains steady, they’ll sign the form for the DOT so I can get that much closer to driving again.  YAY!

In the meantime, I am happy.  I take the acarbose tablet when I start to eat.  I eat normally.  I don’t feel like I am going to die.  I don’t feel ravenously hungry in between meals.  I don’t have the fear anymore…I feel calm like I know that this is what I know will work…after all it Has worked so why wouldn’t it work now?

This is definitely a good thing!

Six Words That Define Yesterday, Today and Tomorrow

I subscribe to writing prompts and yesterday’s was to describe your current life situation in six words so here’s my stab at that.

Content in my four poster bed.

My first purchase when I came back from Israel and one that meant the very most for me was my bed. Prior to that I was homeless and a vagabond sleeping on a mattress on the floor. Having a bed frame and getting off that floor was a step up…literally and figuratively.

I had already met Scott because when I found the bed on Craigslist for cheap, he borrowed his daughter’s van and went with me to parts unknown to get it and the box spring that came with it.

We brought it back to my house….yes, the one without running water or sanitation…that I was basically homesteading off the grid in… and I remember the fun night we had figuring how to set it up with no instructions. It was an Ikea four poster white metal bed and I loved it. Sleeping in it that first night was heaven. To be off that floor and in a real bed was empowering a move that I can hardly describe in making me feel human again.

Not long after Scott decided that the conditions that I was living in were just too deplorable and offered me space at his house and I moved, leaving my bed behind.

And it was this past Thursday that finally, we were able to move not only all of my other furniture – an antique buffet, my dining room table and chairs, an antique armoire, a bookcase (can you have too many?) and a dresser for Evan – but also my cherished bed to my new home, finally leaving all of the horrible past that happened to me when I first returned from Israel behind.

So yes, those six words sum up how I felt yesterday very eloquently – content – very content – in my four poster bed.

Settling In

Up to this point, I have been rebuilding my own life from the ground up. Rebuilding inside and outside. Therapy has helped on the inside and for the outside I have acquired shoes and clothes and lots of books and yarn.

This week I have taken a new step in the rebuilding process.

I had some of my furniture still left in my old house. It hurts me so much to be there that I cry tears of such pain every time we have to go there. Scott and I had planned to get the boys to help and on Thursday this week, we would move my cherished furniture from my old house to my new house — the house Scott and I share.

I was entirely too upset to be a part of the “festivities” so I stayed home and worried myself into a migraine and upset stomach while the move was made but I was so happy when they arrived home and everything was brought inside.

We celebrated with pizza and donuts and by putting our bed together last night. We couldn’t get the box springs up the steps (they say that love grows best in small houses but come on!) but we still had the slats under the mattress so until we can get a set of separated box springs, it works.

In the meantime, there’s a lot more storage space which after rebuilding with clothes and shoes and books and yarn, I need a LOT of. AND there’s a lot of organizing, rearranging and homemaking to do.

And that, I think is the next step in my rebuilding. When I was out shopping last evening, I looked at tablecloths and bedspreads and dishtowels instead of clothes and cute socks. I think I am moving onto thinking of things around me and outside of myself.

I am moving onto making my house into my home and that’s a huge step forward for me…a long way from where I was two years ago and yet, a long way still from where I hope to be in two years.

There is a difference though that is the key. This time around I have dreams and I see myself in them.

Childhood Memories

I know we are all used to those posts filled with bright green grass, sapphire green pools and brightly colored hair ribbons hanging off perfectly curled ponytails swinging behind the gossamer curtains of childhood memories mixing with the smells of vanilla and strawberry and all those special things which take those writers back to perfect childhoods.

And those are very good posts…they’re just not MY posts and, really, they never WILL be MY posts.

I thought a lot about it today. What is my favorite childhood memory? Do I even have one? Do I have ANY happy memory?

While it’s well-known I don’t have a lot of memories of the years between 4th and 12th grade (and thank Gd that my best friend Christine keeps those memories very much alive for my son Evan for me…and keeps them for me when I am ready for them) – I have memories of my young childhood. I remember where we lived, where I went to school, the kind of saddle shoes I wore in third grade (black and white as opposed to brown and tan which is the kind I REALLY wanted), my brownie uniform that I wore every week to school and then walked to the Methodist Church in town for our meetings.

I remember the house we lived in, the year we lived with my grandparents and everyone forgot my birthday and then got me an old applesauce cake from the Thrift Store after we had supper. I hate applesauce cake to this day.

I remember the year I had a skating party for my birthday and I got beaten afterward. Beatings on my birthday were kind of expected. That particularly birthday I was also raped by an older boy who was visiting us. Later I was beaten for that too because, of course, it has to be a just-turned-8 year old little girl’s fault right?

And along with that I remember the same house and brutal beatings, the blood and the police who came as the sun rose and the broken glass and the screams going unanswered. Cries for help echoing in the subdivision in which we lived, blood curdling screams as faces were broken, glass was shattered and little girls were scared into silence.

Yes, there were happy times I suppose. I have seen some pictures that other people have. I don’t have any. My sister took all the pictures long ago and never gave any to me. She says I don’t belong to her family and so I don’t deserve any.

Whatever.

Maybe if I had happy pictures I’d convince myself it was all happy even though in my heart I know it really wasn’t. But I am also not so jaded as to think it was all bad. I know that everything is not so black and white.

But could I pick out a sunshine and rainbow moment of happiness that was all encompassing that involved time with my immediate family? Let me just say I qualify this only because I did spend so many happy moments with my grandmother and it was only with her that I can say I ever felt truly safe and happy. So my question then becomes and the question I have been framing is…

Do I have a happiest moment from the childhood I spent with my mom, dad and sister?

Sadly, the answer is no. I can’t for the life of me really think of one. And yet, there were opportunities. The Harlem Globetrotters Game, Disney World, so many opportunities.

But each opportunity that I think of was tainted either by a violent fight or by some other situation that had no business happening.

I don’t really know how to say this other than to just come out and say it. I can allude to it and it’s hard to just say. I can’t freely talk about it yet but if you want to know why I have no favorite childhood memory, this is why – being molested can ruin everything that ever comes after it. No matter what that “everything” is…nothing will ever be happy again no matter how happy it seems.

Remember that.

Sore Fingers Today

I have severe hypoglycemia.  It’s a real bitch too because I have had two grand mal (tonic-clonic) seizures from it and I live in absolute fear that I’ll have a really bad low, won’t be home and I’ll have a seizure.  I blame my 30# weight gain on it AND my food addiction.  I just worry that I won’t be able to keep it steady so I eat all the time OR it drops and I eat and then it drops unexpectedly and I eat and well, you get the picture. 30# later if I am not full ALL THE FREAKING time, I panic.

It’s a sad way to live.

I finally decided I had to see an endocrinologist and I decided to go the distance and see the one I’d been seeing before I left for Israel.  In some ways it was a good choice because he had my records from 2010 when I was there for (go ahead and guess) hypoglycemia although it wasn’t so good because his middle name is NOT bedside manner.

He told me that my failed glucose tolerance test meant absolutely nothing to him (thanks, I drank that nasty ass orange crap and had a 40 low for nothing then) and that I’d have to go “make nice” with the lab and then get myself into a bad situation (read: nasty low) and go get gallons of blood drawn for half a gabillion weird tests that no one has ever heard of.

And that’s not exaggerating because when I went and made nice with the lab (good tactic if I do say so because….) they hadn’t even HEARD of two of tests and had to call their regional HQ to get the coding for them and even the regional HQ had to look them up.  Even THEN they couldn’t identify two others without calling the doctor AGAIN for guidance.

The supervisor at the lab keyed it all in and then told me that when I hit that “sweet spot” and had a good low to get myself in pronto and they’d take me right away.

So…I talked to him last week when he called me to tell me not do strenuous exercise before one of the tests (really?) and assured himthat today would be the day.  Actually it had to BE the day since it was the only day when poor Scott wasn’t running everyone back and forth all over Gd’s creation to doctor’s appointments and whatnot.

This morning I got up and started off with toast with apple butter.  When Scott got up at 7:30 I was at 180.  We talked about when we wanted to have to low hit and I knew it would happen about an hour after I ate something so terrible it couldn’t even be classified as food.

In this case it was going to be two packages of Little Debbie Swiss Rolls (I am gagging even as I write this.)

So…Scott went to get his hair cut and I sat in the car and ate 3 of the 4 rolls.  There was no way for love or money you could get me to eat that 4th roll.  I was almost ready to just hurl it all out and I couldn’t imagine anyone ever eating more than one package of these even though I know there are those who do (and I am NOT judging) – all I wanted as a hash brown or something that didn’t taste like crusted sugar and chocolate to cleanse my overloaded palate.

But…I had to suck it up.

So we went to pay the insurance, get Scott’s license picture taken and do some shopping at the grocery store which is where I hit the sweet spot.

I knew it when I couldn’t see anymore so we scurried into line, paid even though there was a HUGE error on our receipt and ran out and across the parking lot to the lab.  I was shaking and in a sweat.  I checked my glucose and I was at 50.  I knew we were on borrowed time before my liver decided to take some of my fat and send it northward to my pancreas so we ran in and wrote RUSH on the signin.  Scott even told the tech that his wife needed to be drawm immediately for her blood sugar before she had a seizure!

HUZZAH!

That pulled me past two folks who were there with appointments who weren’t really pleased with my cutting line (I am SOOOO sorry…really) even though I sort of had an appointment which I sort of made three weeks ago sort of but hey, they wouldn’t have known that would they?  Sorry again.

Once we were done I was STARVING so I had a 7 layer burrito and a taco (now you know why I am FAT) and went to my therapy appointment.

I have to admit my fingers are sore from all the finger sticks I did today.  I have hit three lows since that induced one and I know the rest of the week will suck until I can get a good diet of fruit, veg and protein back into my system.  But strangely that’s okay.

I know that I still could have a seizure but I also know that MAYBE this time something can be done.  MAYBE something WILL be done.  When I was in Israel my endocrinologist put me on acarbose and that worked really well.  I’d like to do something like that again.  Something that will keep me steady.  Then I can get on a good, low calorie diet…more activity including my daily 5k…and hopefully kick my metabolism back into gear.

So…while I may have very sore fingers today..I also have hope.  I think it’s a fair trade off.  I’ll keep you posted.

Taking Back My Name

Everyone always tells me that a rose by any other name would smell as sweet when I get sad about losing my Israeli name – Eli.

For 2 years I was Elianah or Eli and I loved it.  Elianah-Sharon.  I still say it the Israeli way – Sha-RON – in my head.  Of course once my plane touched down back in the US, I was Sharon again.  It just never felt right after that.  Not Israeli Sharon – a foreigner even to myself.

I wish there was some way I could just retake the name I took when I immigrated, the name on my Israeli papers.  But I can’t without changing it legally here.  There’s a little hope that MAYBE when I marry again I can change it, making Sharon my middle name and Elianah my first name.

With my luck though….

Tonight though I did change it a little.  I changed it on Facebook and while that seems insignificant and petty and really, it is….it meant a lot.

I am socially phobic.  The only people I regularly interact with ARE on Facebook so while it was a trivial step, it was an important one to me.  I changed it here as well.  This is my home on the web so I should be myself here.  I should be who I am inside and that person will always be Elianah-Sharon.

Yeah, I get that a rose by any other name…and that’s true.  But I also get that we have to feel comfortable in our own skins and this makes me feel comfortable in mine.  I’m kind of letting a flag fly and that’s kind of scary because whereas I have been hidden for so long, this kind of puts me right out there for everyone to see.  And maybe hurt.

It’s scary.

But being me is more important and we shall see what kind of a risk this really is won’t we?