The Apology That Never Came

I am so sorry that I spread a story about you.  It doesn’t matter whether it was true or not.  I should have thought more about where it would go and what it would do to you in the future.  Oh, I knew it would hurt you which is precisely what I intended for it to do because yes, you did hurt me and yes, I know you did apologize and yes, I did accept your apology.  But that was long after I told the story.

Now I want to ask YOUR forgiveness.  Can you forgive me?  I can never take back to story and I can never give you back the friends I took from you or the reputation I stole from you as I spun a story designed to make me look like a martyr.  I mean, isn’t that how everyone tells a story when they feel victimized?

I know there were lots of stories to be told during our time together and many times you didn’t tell them and I thank you for that.  You never made a point to make me look like a bad person on purpose even though I know you had your support people and I know you told them….you told me you did and I knew that telling them was like telling a wall.  It never went anywhere.

But what I told had legs and still has legs.  I’m sorry I can’t get it back.  I stopped telling it because it doesn’t do anything for me anymore but I know others still get something out of it and for them, it’s just another day of personal satisfaction for them to continue to wallow in it.  They always hated you and this just keeps that fire going.  I wish it didn’t because, really?  To be honest?  I’m about as tired of it as you are.  I want to move on too.

I liked being the victim for a long time but now even I want to do something else but when they say karma sneaks around to bite you in the ass?  They’re right.  So while I can apologize to you, I can never make this one right.  It’s like a game of telephone gone wrong.  What you did happened and it was over.  What I did is like a stone in the ocean….and it never, ever ends and sadly, I didn’t anticipate that.

So please forgive me.  I’m sorry.  I’m sorry for you and I am sorry for me.  I am really sorry that this just won’t stop.

I’m sorry too.  For me, it wont’t stop until I die.  Tragically, I do know how you feel and unfortunately, I don’t feel all that sorry for you.

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The Biggest Disappointment

I have been thinking a lot the past few days.  Usually this leads to a very dark place that I have a hard time coming back from.  I so very don’t want to ever go back to that place ever again.  Often when I find myself headed to this place these days, I just shut down the thoughts and go to my happy place and lalalalalala…..it doesn’t matter anymore.

But sometimes the dark side creeps up on me.

What I am thinking about is my biggest disappointment.  That, of course, is and always will be having to leave Jerusalem.  Despite all of the wonderful things that have happened since, and I don’t want to say they are any less amazing or wonderful, leaving that city will always be the biggest disappointment of my life and one I can never fix.

Of course that leads directly to a situation of lashon harah (something very bad which was said about me by someone else to many people, regardless of whether it was true or not, who then believed it carte blanche without question because the person telling them wanted them to – take it from me, as our sages say, the evil tongue, lashon harah, does kill a person when it spreads and it never should.)

The worst case of this spread of lashon harah is when it was told to my father.  Today I had to accept that without question, without asking me, without any doubt whatsoever, my father believed it.  I had to accept today how very much this has hurt me…how truly deeply it sears my soul to not be believed by my very own father and worse, to have him automatically believe the worst of me without ever even conceiving that he should even believe the better.

This takes me back to when I was 17 years old and some piece of scum walked into my father’s nightcluband told him I was “the best he ever had.”  My father came home and beat the living shit out of me with a razor strap.  It happened without warning so quickly I barely even knew WHY I was being beaten and defense?  Absolutely none.  And mercy.  Really?  I was guilty without a trial.

And that’s how it remains today.

Guilty without a trial.  It’s just like it was when I was 17 – and my father’s opinion of me has never changed.  For a man who molested me, this is actually….well, I don’t even know what it is.

Today I had to accept all of this.  And obviously I need to act on it but I don’t have any idea what to do.  I didn’t have therapy so I didn’t have a chance to talk to my therapist – that will have to wait a week.  In the meantime, I am just going to process it and not worry about what to do about it.  I am going to let it sit there.  I am not going to roll it over and over and ride with it under my arm to the dark place.  I’ll just wait a while until I can talk to Kellye and then I’ll know what to do and I’ll act on it and send it on it’s way.

This is something I really don’t want to think about.

This is betrayal at it’s very worst.  It’s betrayal, lies, deceit, it’s a whle lifetime of what I had built up in my mind as support from my father that never was and all that “never was” just crumbled away….I guess.

But as unreal as all of that was – the hurt is VERY real.  I am devastated.  I am shot through with devastation.  I am lying on the floor, curled up in my grief for what I thought existed and never did.  I am once again afraid to trust, afraid of people, afraid of the world.

And I know it had led to both a setback and a step forward.  Hopefully they will cancel each other out.

Time will only tell.v

Aftermath of Elul

During Elul, we prepare ourselves for the holiday of Rosh Hashanah and the Day of Atonement – Yom Kippur. We are commanded to look within ourselves and to prepare by apologizing to those we have wronged throughout the year.

I don’t know about others but for me, I know this year was the first when I was able for a long time to even consider taking baby steps in this direction. There was one friend in particular that I wanted to apologize to. I wasn’t exactly sure why she had stopped speaking to me but I had an idea and since she wasn’t speaking to me and I have a mindnumbing fear of confrontation, I wrote a letter to her apologizing for all of the things I could imagine I may have done that could have caused the rip in our friendship. I invited her to write back and gave her my email address. I even explained a lot of what happened to me the last few years medically so maybe she’d have some understanding of where I was coming from as well.

And for some reason I had an expectation she’d understand and this apology, while not totally healing the rift between us, may be a little bridge to hopefully gaining a foothold and hopefully opening a little crack in the door that had closed between us.

And today I am having to accept that I was wrong. That rift is unhealable. I don’t even know if she forgave me. The answer to my letter of apology was a big, fat sound of crickets.

Oh I could rationalize it and tell myself she didn’t get it but I think she did. Maybe a letter was wrong but I didn’t really have any other way. I’ve sent emails in the past and the reaction was the same.

Silence.

I sent another Rosh Hashanah greeting and the response was the same.

Silence.

This only serves to drive me deeper into myself and to cause me even more self blame and depression. I know I deserve it and I know I cannot force anyone to forgive me. That’s their choice. I can’t force anyone to respond to me. Again, their choice.

But I do know how it makes me feel and I know it makes me take up residence even further inside of myself and trust venturing out even less. These people were friends and they don’t want me. What would make me think anyone else would.

I know it’s a bummer of a message to receive as the joyous holiday of Sukkot starts but it is the aftermath of Elul for me. I want to add that it doesn’t really change anything for me except for piling just a little more Jewish guilt on my plate,

I am who I am. I have disappointed and hurt whom I have have. They will forgive or they won’t. I am further convinced that the leprosy of my neshama (Jewish soul) lives forever and will never be cured.

The aftermath of my Elul probably will also never go away.

Life As A Headcase: Frustration

I love to use websites for inspiration for my writing, especially when I can’t seem to come up with anything I think is worth writing.  My favorite site is Thoughts From The Blue Notebook and today’s topic deals with frustration.  Which…I guess is a good topic for me because Frustration is a great friend of mine.

Back that one up, maybe not a great FRIEND but due to my physical issues, it is a constant companion.

Frustration comes to visit right along with the Darks.  I feel down and I get frustrated because it makes me feel inadequate, lazy and whiny.  I am afraid I am getting a reputation as a hypochondriac because I have so many things on my health plate.  I get myoclonic seizures which annoy the hell out of me.  Imagine having your reflexes tested non stop for minutes or even hours!  And there’s nothing I can do to stop it except take medication that I often run out of if I have a particularly bad month.

Frustration is there beside of me.

I want to take my son to the book store, have a mocha latte and read a magazine on home remodeling.  I can’t because I have seizures and my license has been gone since September.  I am optimistic though that I’ll get it back but Mr. Frustration mocks me now.  And the time drags.

I think time and Mr. Frustration are close, personal friends…or just in on this together.

I’m content and happy with my life but I have this part of me that longs for the
magical recreation of those happy moments in my life.  It’s like this part of me whom I call The Little Dreamer Girl wants to collect all the happy she can so we can just fall into it and roll around naked.  (Okay TMI, I know but that’s what it’s like).

And very often this quest to bring me baskets of happy blows up in her tear stained face because like a cat bringing home a dead rabbit, only to make it’s owner happy, other people don’t really understand what she’s all about.  Hell, I hardly understand all these parts of me.  How can I expect anyone else to get it.  And when they don’t get it, how can I even explain that it’s not ME doing this.  It’s Little Dreamer Girl and I really have a hard time stopping her from gathering those happy things and bringing them home.

Frustration holds her hand I think and I wish she’d quit going off with him.

Frustration digs deep into my soul, what little I have left, when old friends won’t talk to me anymore.  When people I thought would be there forever don’t want anything to do with me.  And especially when they stop by and say hi never to return. Frustration exacts his revenge and takes his pound of my flesh and blood, and mind, and runs, cackling into the darkness.

Frustration is a contant in my life.  Not MY constant (ala LOST) but constant enough that I am not surprised anymore when I feel his presence.  I just try to remind myself that Frustration comes and goes, although at his own whim.  I never know when he’ll show up or even when he’ll go.

He knows of my neshamale’s (Little Soul in Hebrew) deep connection to Israel and Jerusalem and he sits by the sidelines taunting me, enveloping me in sadness and homesickness, and making sure I know it will never be in my grasp again. He plays with my life like tinker toys.  Some days he let’s me be built up and other’s he pulls me apart.  His exaltation comes when there is absolutely nothing I can do, when I feel completely overwhelmed, powerless and empty.

But that’s how Frustration is.  And sadly, I have to learn, somehow, to live with him.  He will always be there and somehow I have to find a safe place and never let him win.

Fireside Chat With The Autism Mom: Life After the Autism Waiver

My son, Evan, is 21.  We were out of the country immediately after his graduation from high school which was an incredible experience.  I have to tell you, Israel is DA BOMB for autism services.  There are services for babies, little kids, big kids and adults.

TONS OF SERVICES!

So many services that they apologize to you for not being able to get your kid into a group home (if they so choose) for 6 months to a year.

SERIOUSLY???

In the US, you’re lucky to have a multi-year wait much less the blink of an eye that is a year. We really appreciated the services there but…all good things much come to an end and we returned last March for various reasons.

I got Evan back into therapy again at the John Merck Center here in Pittsburgh that specializes in autism spectrum disorders and their treatment.  Then I got him back with his case management service that helps provide various services he needs.  Unfortunately, the state cannot provide adequate services to everyone who needs them.

You know the drill…there are other children more severe than your child, yada yada yada.  So we got limited funding which would get him a community aide for a few hours a week and at least get him out of the house and into the community. This was especially important since I was having seizures (and still am) and lost my license last September.  We live in a pretty happening area but you need wheels to MAKE it happen.  It’s kind of disappointing to me to miss out on it all (although since I am agoraphobic it’s really not as bad as I make it sound – I’m all “big dog on the porch” though, to talk about it!)

Evan feels so isolated because in Israel we were in Jerusalem and it was like paradise. He figured out the bus system and with his monthly bus card, he could go anywhere the buses or light rail went, including school which made him so much more independent.  He knew the bus system so well, when stranded at the mall by a visiting friend, he called and told me he had it covered and walked in the door 20 minutes later. He could shop on his own, buy iced coffee (an Israeli treat and very unlike the US version) and generally do the weekly shopping if asked and given the credit card.  He was Mr. Jerusalem and absolutely blossomed there – including becoming fluent in Hebrew!

But now we’re home and there aren’t any buses and so he does feel kind of trapped.

Well, I was informed by our case manager that some full waiver slots were coming open.  What that would mean is that Evan would have $30k to use for aides, supported work situations, camps, programs and other goodies we can’t even begin to imagine.  When we had the original money for the aide for a few hours a week, we couldn’t even find an organization that could provide a local aide or even an aide close to Evan’s age.  We had used the services before Israel and basically he would go out for dinner and an evening at Barnes and Noble with a kid who probably couldn’t get a better job.  That discouraged us this time too since we wanted someone local to keep him in touch with his new community but also someone closer to his own age (they sent a grandma once) who could be more of a buddy and not so obviously an aide.

Once I heard full waiver slots were open, I started my campaign to get them for my son.  I called everyone I could think of, including the county social worker who would hold the determination conference, and begged.

I talked about my epilepsy and how my inability to drive really limited Evan’s life. I knew he was on the list but I didn’t know if he’d make the cut.  After all, they were reviewing ALL the individuals, some older and some younger, and some with greater need.  It was a crapshoot whether we’d get funding or not but I made sure I brought his case before the right people and fought the good fight.

And…he was the first to receive waiver funding this year. What this means is that he has this funding for life.  FOR LIFE!  Unless we move, of course, which I don’t think we would even consider unless we went back to Israel but I don’t see that happening except for vacations. He has 25 hours a week of aides who come to take him out, play basketball and do artwork with him.

It’s overwhelming actually to go from zero to 100 mph in such a short time period but I can see, while he is tired and a bit overwhelmed, he is happy. He gets to go to baseball practice and play on another league he wanted to join.  The girls who are his aides are his age and they play basketball and catch and color with him when he wants to.  They take him shopping with them and out to lunch.  He is 5th on a waiting list now for supported employment.  His psychiatrist and I think this is a great option right now as he prepares for regular employment (if he wants…but its his choice.)

Right now his days are filled which is exactly what I wanted for him.  And my heart is filled for him.  His world has opened and it’s his for the taking.  He arranges what he and his aides will do, he makes calls to schedule things and actually used the internet to find the local library’s address the other day so he could go there. I am so proud of him and glad that people listened to me with compassion for him.  That’s what we need more of.  I thank those people who made this possible.  I actually called and thanked the county social worker who I doubt gets much thanks for the hard decisions she has to make. But we thank her.

And every time I see the smile on my kid’s face after his aides are gone for the day, I thank her even more.